Every Move Matters — Virtual Summer Camp

August 14-16, 2026
Fundraising Page: https://periodicparalysis.networkforgood.com/projects/299515-every-move-matters-2026

Who It’s For

Every Move Matters is for the periodic paralysis community and the allies who cheer them on. Campers can be people with PP, rare disease families, clinicians, friends, or anyone who believes every move counts. Together we’ll gather for a weekend of connection, learning, and virtual camp fun where every move matters—big, small, creative, or simply showing up.

What It Is

Every Move Matters is an accessible, community‑powered virtual summer camp celebrating movement in all its forms: physical, creative, social, reflective, or simply being present. Campers connect through workshops, cabin activities, social hangouts, and movement‑friendly prompts designed for fluctuating energy levels and diverse accessibility needs.

How Movement Commitments & Pledges Work

Every Move Matters is built on the idea that movement looks different for everyone—especially in the periodic paralysis and rare disease communities. Campers choose a movement commitment that fits their body: stretching, drawing, knitting, journaling, taking a photo, attending a session, connecting with others, or simply showing up.

Supporters can pledge a donation based on your commitment (per activity, per session, per creative action, or as a flat gift). Your movement becomes a way to raise awareness, celebrate accessibility, and support programs that help people with periodic paralysis feel seen, supported, and connected.

How to Get Involved & Fundraise

• Join a cabin and help raise funds that support education, clinician outreach, community programs, and resources for people living with periodic paralysis.
• Create your personal fundraising page using the link above, share your story, and invite your community to support the cause.
• Participate in cabin challenges, movement prompts, and camp activities that build visibility and momentum for PP.
• Every dollar raised helps people feel seen, heard, supported, and connected.

How to Get Involved & Attend Sessions

• Register as a camper to access the full schedule of workshops, social events, creative sessions, and movement‑friendly activities.
• Attend live virtual sessions or watch recordings at your own pace—everything is designed to be flexible and accessible.
• Join cabin meetups, participate in community chat, and engage in activities in whatever way works for your body.
• Whether you move a lot, a little, or differently each day, you belong here.